Paley Institute

More results...

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
page

Author name: admin

Congenital Femoral Deficiency, Patient Care

Sadie

At 3 days old, Sadie was diagnosed with Congenital Femoral Deficiency. We were not given any options at that time to correct anything with her leg or hip and had never heard of this condition until that day. We found Dr. Paley online a few months later and first met with him when Sadie was 6 months old. He told us he could correct her hip and lengthen her leg and we’ve never looked back. At 3.5 years old she underwent super hip 2 surgery and wore her first external fixator for 4 months. After 9 months of physical therapy and 2 surgeries, she had a functioning hip! At 6 years old she had her femur lengthening surgery and wore her 2nd external fixator for 6 months, lengthening her leg by 3 inches! We will continue to do lengthenings, therapy and treatment with the Paley Institute team until her feet are flat on the ground. In between treatments, Sadie is an active ice skater, ballet dancer, cheerleader and swimmer! We are so thankful to the Paley Institute team for making this possible for her and for all of their encouragement, help and friendship along the way.

Patient Care, Perthes Disease

Maddie

Our journey with The Paley Institute began almost 10 years ago when we sought a second opinion with Dr. Paley regarding the management of Maddie’s Perthes disease at 4 1/2 years old. Maddie was a young 19 months when her left femur head lost blood supply. We never imagined her disease process would be so complex. Dr. Paley worked tirelessly to salvage her hip but despite two hip distraction and external fixator procedures, femoral head reshaping, and a procedure to slow the growth in her other leg to correct length discrepancy, her hip continued to deteriorate over time. Maddie underwent a total left hip replacement at 13 years old in November 2018 performed by Dr. Minas. For the first time since Maddie was very young, she has excellent mobility, does not limp, and is pain-free. Six months post-op she is back to pursuing her equestrian dreams and is a happy, confident teenager. The journey was discouraging at times, but our faith never wavered as we knew God had led us to the Institute for a reason. We will be forever grateful to Dr. Paley, Dr. Minas, and the entire Paley Institute team for their compassion, unmatched collaborative multidisciplinary and expert innovative care, and tireless efforts to ensure each patient has an optimal outcome. The journey was discouraging at times, but our faith never wavered as we knew God had led us to the Institute for a reason.

Joint Replacement, Patient Care

Liana

When an athlete comes to the end of his/her career, there is an emotional and physical transition process that takes place. With a career-ending injury, however, the cause of this change is sudden. An abrupt and unexpected halt leaves no time or opportunity to plan for a transition out of the sport. An athlete is hard-pressed to come up with solid coping strategies to alleviate the shock and make the necessary lifestyle adjustments associated with unanticipated sports’ retirement. The distress is even more severe when the injury is unusually complicated, with no defined protocol on how to address it or professional consensus on how to repair it. A complex knee ligament injury with severe cartilage damage ended my collegiate athletic career. Prior to Dr. Minas, I was heading in a downward spiral, living each day in chronic pain. I had seen multiple doctors and had multiple procedures which failed to resolve my problems; my injury proved to be very challenging to the top in the orthopedic field. Upon meeting Dr. Minas, however, I knew I was in excellent care. He took interest in me both as a person and an athlete. Dr. Minas took the time to understand my personal well-being goals, which were considered in his overall approach and plan. He addressed the complexities of my injury in a confident and pragmatic manner, thoroughly explaining his surgical plan while answering all my questions and concerns. In addition to being extremely talented and highly accomplished in orthopedics and cartilage repair, Dr. Minas was one of the most down to earth and approachable surgeons I had ever met. Even after an extended day of surgeries where it was well after hours, he stopped in the post-op room to explain my procedure outcomes. The next day, Dr. Minas personally checked on me before being released from St. Mary’s Hospital. To put me on the path of healing and regaining an active lifestyle, Dr. Minas recommended an innovative cartilage procedure called matrix autologous chondrocyte implantation (MACI) with a high tibial osteotomy. With MACI, Dr. Minas took a small sample of cartilage from my knee and sent it off to a lab, where new cartilage (my own) was grown. Dr. Minas then implanted these tissue cells back into my knee. For the first six weeks after surgery, I was touch-down weight-bearing and used a CPM (continuous passive motion) machine for 6-8 hours a day to prevent stiffness and promote healing. Several months of physical therapy enabled me to build muscle and regain strength in my leg. After a total recovery period of about a year, I am happily enjoying hiking, biking, and other physical activities that previously caused me great pain. I recently celebrated with a trip with friends to Denver, Colorado, where we hiked over 15 miles up and down beautiful mountains. Dr. Minas’s compassion and dedication to his patients is evident. It was clear that I was more than just a damaged knee; Dr. Minas treated me as a person–a young athlete going through a full healing process. I am very grateful and fortunate to be under his care.

Joint Replacement, Patient Care

Jesse

Twenty years ago, at the age of 46, I was told that I needed a total knee replacement. At the time, I was managing my busy orthodontic practice, coaching Little League baseball, and raising a young family. The news was devastating. As I traveled the country seeking other opinions, I became accustomed to hearing the same dire descriptions of my knee’s poor prognosis. It wasn’t until I met Dr. Tom Minas that I began to regain a sense of hope and optimism. I had suffered a rare complication of routine knee arthroscopy. A long-time runner, I had felt a pinch in my knee after a long run, and I was diagnosed with a torn meniscus. A few weeks later, I had a 15-minute knee ‘scope’ and was told to return to normal activities within a few days. But the pain and swelling persisted and subsequent x-rays revealed that I had developed avascular necrosis of my femoral condyle. The blood supply of my thigh bone had somehow been compromised during the surgery and now I was limping on a progressively deteriorating knee. The only option seemed to be surgical removal of the necrotic area and prosthetic joint replacement. Fortunately, one of my orthopedic surgeon friends referred me to Dr. Minas. At the time he was seeing patients at his Cartilage Repair Center at The Brigham and Woman’s Hospital in Boston. Dr. Minas introduced me to the concept of biologic joint preservation and cartilage repair. In 2001 I had an A.C.I. procedure (autologous chondrocyte implantation) along with a High Tibial Osteotomy. The post-operative physical therapy was at times challenging, but I was soon able to return to an active lifestyle which included hiking, cycling, and swimming. Most importantly, my knee was no longer a limiting, defining factor in my life. I also discovered that although Dr. Minas is a world-class expert in the field of joint preservation, in person, he behaves more like a small-town doctor. He always took the time to listen to my questions and concerns and he has surrounded himself with wonderful, compassionate people. Since my initial surgery, I have had a few more procedures, and that’s the nature of joint preservation. The process requires careful monitoring and realistic expectations. But by choosing an option other than total knee replacement, I extended the life of my biologic joint and I’m living proof that this treatment approach is remarkably valuable. Now, 20 years after my initial injury, I am so grateful to Dr. Minas and his exceptional staff. As a Florida resident, I was thrilled to hear of his recent move to the Paley Institute in West Palm Beach. But the truth is that I would willing to travel to see him regardless of his practice location, and I’m sure that most of his patients feel the same way. Thank you, Dr. Minas!

Hip Dysplasia, Patient Care

Jayde

When Jayde was a small child, I noticed that her feet turned slightly inwards as she walked and while standing. I took her to her pediatrician, who in turn, referred her to an orthopedic specialist. Jayde was diagnosed with Tibial Torsion. The doctor told me that the condition was benign and that “it would correct itself” during puberty. While in high school in Germany, Jayde began having bilateral knee pains that prevented her from engaging in sports activities. Daily life was painful. When she returned home, Jayde’s pain was no longer isolated to her knees – it now extended to her hips. I took my daughter to a local orthopedic doctor who ordered various imaging studies and recommended that Jayde undergo physical therapy. Jayde also has scoliosis. Following months of physical therapy and increased pain in both knees and hips, we met with the doctor. He was at a loss on how to proceed. He stated that he did not know what else he could do for Jayde, and referred us to the Paley Institute. Being locals, we had never heard of The Paley Institute, let alone of the remarkable work that doctors do here! What a life-changing effect being at the right place, with the right doctors makes! From the moment we walked into The Paley Institute we knew that this was the place where my daughter would get the help that she needed! Dr. Feldman is my daughter’s surgeon, and he is God sent! We absolutely love Dr. Feldman! He is our hero! Dr. Feldman did everything that he was supposed to do on that first appointment in 2017, but what impressed me the most, in addition to his charisma and empathy for his patients, was that he was able to diagnose Jayde’s bilateral hip dysplasia and bilateral femoral anteversion from watching her walk! How impressive is that! Jayde underwent her first de-rotational femoral osteotomy of her right leg in April 2018, followed by the hardware removal in October 2018. Jayde recently had the same corrective surgery on her left leg this August 2019. She is undergoing intensive physical therapy. Dr. Feldman stated that Jayde’s legs are now ‘perfectly aligned’, and that hopefully, further surgery to her hips will be unnecessary! What a blessing! What a miracle! How amazing to be pain-free and on the road to recovery! My daughter will be able to go on walks on the beach again and go bicycle riding which she loved doing but was unable to because of the pain that she felt! Every day, delightfully ordinary life restored by extraordinary individuals whose passion and noble mission in life is to help others! That is what Dr. Feldman does, and that is what everyone who works at The Paley Institute do every single day! Doctors, Physical Therapists, Nurses, Administrative Professionals, they all contribute in their specialty to the healing and treatment of their patients who they treat as if we are family. And indeed, they do become an extended family that we love, admire, and respect deeply. The level of care provided at The Paley Institute is simply outstanding!

Joint Replacement, Patient Care

Mike

Dr. Minas was recommended to me by my primary care physician about 10 years ago after I injured my knee playing rugby. Being a rugby player, I dismissed it, took a few aspirins, and played for another 6 years before the pain became too great to continue. I finally broke down and decided to look into MACI. I learned what I could about the procedure, and although the rehab and total recovery time seemed brutal, the technology was fascinating enough to me (as a chemical engineer) that I decided to go ahead with it. Basically, part of the reason I got MACI is because it sounded cool. Prior to surgery, I was able to walk and sprint without too much pain, but any jogging caused me excruciating pain in my knee. This would cause my knee to swell, which would then make any movement more painful, and further increase swelling… and the cycle continued. Ibuprofen multiple times a day was part of my routine – sometimes 4 or 5 pills at a time on practice days. The arthroscopy was incredibly quick and easy, and I could have walked out of the operating room if I wanted. The next phase I knew would not be so easy…The MACI I got required an osteotomy as well, so determining what parts of the recovery were specific to that, and which to the MACI is difficult. Either way, there is no sugar coating it… the weeks following surgery were some of the most unpleasant of my life. I had never had major surgery before, and as an active person, sitting on a couch for weeks at a time with uncontrollable leg swelling was a private hell. Someone should contact the pope, because my wife truly deserves sainthood for dealing with me through it all. While she was working, anything I could do to take my mind off the pain and the boredom was a welcome distraction. I wrote some poetry I had been thinking about for years. I taught myself stone carving and carved a chess set. I planned and executed a live-action Clue night at my house, with me as the crippled party host. I built several massive spreadsheets to determine my fantasy football teams’ best strategies. I started writing a gratitude journal (my wife was obviously the first entry). Mostly though, I just became far too familiar with my couch cushions. But when the day came I was allowed to start walking on my own again, the real path to recovery began, and it has been a long road I’ve still not fully finished (I am 15 months post-surgery at the time of this story). Feeling strength return and finding myself able to do small things again (walking downstairs normally, putting on socks standing up, etc) has been more satisfying than I anticipated. The biggest excitement for me though has come with being able to do the larger things again. I got married a few months before my surgery, and with the craziness of the year, we didn’t have the time to take a honeymoon. As a result, we knew it was going to have to wait until after the surgery… Which complicated the type of honeymoon we could do. My wife and I both enjoy hiking (the western hemisphere’s most-climbed mountain – Mt. Monadnock – is in our backyard, and hiking it five or six times a year isn’t unusual) so we knew no matter what we did, I would need to be able to at least hike on it. We scheduled the honeymoon for 14 months after surgery and hoped for the best. Throughout physical therapy, I had one question that I kept asking: Will I be able to hike? My exercises focused on the muscles needed for that movement, and despite the initial atrophy from 3 months of no movement, after a year the only way to tell which leg had surgery was by the scar. I hiked Monadnock’s 2,100 vertical feet a little over a year after surgery, and though I wobbled a bit on the way down (turns out the stabilizer muscles take longer to get back, and it’s hard to stay in cardiovascular shape with gimpy legs) I made it up and down. I had passed my self-imposed first test for the honeymoon hike. We decided to take our honeymoon in South Africa, and Table Mountain (one of the seven natural wonders of the world) is right in the heart of Cape Town. Since we were planning to be in Cape Town for three days, we decided that climbing it absolutely had to be one of our activities. It is about 50% taller than our hometown mountain, and the top is a massive plateau that can be accessed by foot, or by cable car. I had originally chosen the shortest hiking route up, but after how good my knee felt on my hike back home, we decided to take a much more scenic route that was over twice the length and covered much rougher terrain. We made a great decision, and this was truly one of the most scenic hikes I had ever taken in my life (for perspective, I proposed to my wife on Katahdin’s Knife Edge, which was previously my top pick). Many of the plants in this part of the world are found nowhere else on earth, and at times it was like hiking through Jurassic Park – only the dinosaurs were about 6 inches long and scurried under rocks when you approached. After three hours of hiking, I was exhausted, but of all the parts of me that hurt (every muscle of my legs and feet), my knee was not one. It actually felt better after three hours of scrambling up ladders, rocks, dirt paths and logs that than it did prior to surgery. I was in much worse cardio shape, no question, but my knee actually didn’t hurt. And I’m not even close to done healing. The last hour of

Patient Care, Tibial Hemimelia

Alexa

Alexa was born with Bilateral Tibial Hemimelia. We sought out treatment in Chicago, Dallas, as well as at The Paley Institute. Dr. Paley was the only one of the three that recommended reconstruction versus bilateral amputation. Alexa presents two different types of Tibial Hemimelia. She has Paley type 1A in her left leg, and Paley type 2A in her right leg. Alexa has undergone 6 surgeries so far (we began treatment in December 2019) to correct not only these deformities but also the additional deformities she was born within her legs and foot. Dr. Paley and his entire team are absolutely incredible. We are so blessed to have found them, and trust each and every single one of them to have Alexa up on her own two feet and walking Independently one day!! We are forever grateful for the care Alexa has received and continues to receive here. Thank you from the bottom of our hearts Paley Institute!!!! You truly do save limbs and change lives!!!

Limb Length Discrepancies, Patient Care

Olive

Olives story is very similar to many here. After visiting doctors in the NY/NJ/Delaware area we were about to amputate our daughters leg and foot. My mother in law had heard of Dr. Paley I believe from Oprah or an article and gave us his information. I emailed Dr. Paley telling him we are about to start amputating when he urged us not to saying he could definitely fix Olives issues. Olives leg discrepancy is not a result of a birth defect but rather a tragic accident that happened while she was in the NICU. She was born at 23 weeks and was very tiny and while trying to get a central line the doctor cut off the circulation to her leg which resulted in dead growth plates in her femur and tibia as well as her toes self amputating. Olive has already been through one leg lengthening and one leg/knee reconstruction surgery with Dr. Paley and we are beyond grateful for his skillful hands. We adore all the amazing doctors and staff at the Paley Institute who are working miracles with our amazing little warrior. Despite so much she still continues to smile brightly.

Patient Care, Tibial Hemimelia

Davely

Davely was born with bilateral Tibia Hemimelia in 2015, due to the abnormal orthopedic development in her legs, she had to have her right leg below the knee amputated at 18 months. In order to save her Left leg from being amputated as well in Texas, we came to Florida, to The Paley Institute in October 2018 to have her left leg/foot saved & reconstructed by Dr. Paley at almost 3 yrs. old. We are so happy we made that decision to save her left leg and now see Davely, almost 5 years old, walking with her own Left leg saved and reconstructed with the help of her prosthetic Right leg. Thank you Dr. Paley & Paley Institute staff for the amazing care towards Davely. We love y’all!!! Sincerely, Davely & family

Joint Replacement, Patient Care

Meagan

I was referred to Dr. Minas in May 2019 after an unsuccessful autograft revealed that my 33-year-old knees had more damage to the bone than the procedure could fix. It was recommended that I get an allograft procedure, which was a specialty of Dr. Minas’ and his office quickly reached out to set up a consultation. The appointment was promising: I was a perfect candidate. I had X-rays and an MRI of my right knee and I was placed on a waiting list for an allograft from an organ donor. I received a call on a Friday in November after work that they had found a match. It was exciting and nerve-wracking all at the same time–I was told I had 6 days to get an appointment with my primary care physician to get medical clearance for surgery, notify my job, and book a flight to get down to Florida for surgery. It was a whirlwind and a lot to process, but the plans fell into place and I was able to accept this donor’s gift. The staff at St. Mary’s was wonderful, the surgery was a success, and Dr. Minas and his team made sure I was set up for a successful recovery. Many weeks were spent on crutches and a cane, countless hours on a continuous passive motion machine, many months of physical therapy, but in the end, the payoff was worth it! My knee was almost pain-free for the first time in years. I went back down to the Paley Institute for my 3-month post-op appointment and Dr. Minas was very happy with my results. I knew that my other knee was as bad or perhaps worse than the first, and I was eager to see if my left knee was also a candidate for an allograft, so we started the process over again! X-rays, MRI, the waiting list… with a global pandemic thrown in the mix. There were some temporary layoffs at the hospital which put things on pause for a bit, but once the staff was back at work, it was only a few short weeks before they found a match and I had my left knee allograft at the end of June 2020. The experience was slightly more stressful because of COVID-19, but I felt confident in the precautions the hospital had in place and the surgery went smoothly. I’m now again around my 3-month post-op mark, and still have a long road ahead. My left knee had more damage than the right so I have spent 12 weeks on crutches and had a much more conservative physical therapy regimen. Even so, I’m looking forward to jumping on an elliptical at the 6-month mark, increasing my muscle strength, improving my balance and range of motion, and generally being more active without being limited by pain. Hopefully for many, many years.