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Emily

The first six months of our daughter’s life were anything but typical. When she was two hours old, our doctor sat down in front of us with a pile of papers and a concerned look, telling us x-rays had shown Emily’s right femur to be significantly shorter than her left, most likely the result of a condition called Proximal Femoral Focal Deficiency. It was the first we had ever heard of this. Of all the things we worried about before the birth of our first child, this wasn’t even on the list.

Six months later, we sat in front of Dr. Dror Paley as he looked over Emily’s x-rays, gave her a quick exam and confidently said the four words that would change our lives, “We can fix this.”

He never tried to sell us on how quick or easy this would be. He only told us what he knew he could accomplish. He would get our daughter’s legs to equal length. We were in.

We are fortunate for so many reasons. With a solid hip and a strong femur, Emily’s condition is certainly more favorable than most. We found a doctor who is quite literally the best in the world at what he does. He has a team in place that is informed, experienced, friendly and helpful.

None of that changes the fact that trips to West Palm Beach, some for as long as four months, can be difficult. When she is going through one of her three leg lengthenings, Emily must battle through daily physical therapy which any parent will tell you is stressful for everyone.

But when our daughter is a teenager, standing confidently on “her own” two equal legs, I truly believe everyone in our family will be able to say that it was completely worth it.

Kate and Tim
Middletown, Connecticut

More Patient Stories

Bartek Bułat is a young athlete who proves that determination and faith can work miracles.
Bartek

Bartek’s journey is a remarkable testament to what can be achieved with innovative limb-reconstruction strategies. Born with a rare congenital condition affecting his legs, Bartek was initially advised that amputation and prosthetics were his only options in his home country. Instead, his family sought care at the Paley Institute, where advanced corrective surgeries, including realignment of his knees and feet

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Mosope

On 31st December 2010, we received our new year gift with the birth of Mosope, amid the celebration, there was a challenge, Mosope was born with Proximal focal femoral deficiency (PFFD), i got confused as i have never seen nor hear of this condition. We immediately met with our local doctor that referred us to an orthopaedic consultant, the Professor

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Larry

When a person is diagnosed with a serious medical condition that requires surgery, usually they seek a second opinion that hopefully informs them that things are not so dire. Imagine when the second physician tells the patient that not only is surgery required, but an additional procedure is needed as well. This is what happened to me. Upon a neurologist’s

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